This factsheet is for advice and guidance only. It is not intended to replace advice from a medical professional. Please ensure you follow manufacturer’s instructions for use and that you carry out appropriate risk assessments.
The aim of this factsheet is to provide preliminary information on the equipment available to help children with routine tasks. If you are looking for equipment solutions for an older child, it may also be useful to refer to other Living Made Easy factsheets that cover equipment for adults.
Bath time for children is usually an opportunity to play with parents, sisters and brothers. This should not be any different for a child with additional needs, although supportive equipment such as a bath chair may restrict the range of play activities.
Busy schedules and time constraints may make encouraging independence difficult. This is especially true on a school day, when there is so much to do in a limited time. Parents will often find that it is much quicker for them to wash their child themselves. However, try to use more relaxing times, such as evenings, weekends and holidays, to encourage the child to be more independent.
Often, the biggest barrier to bathing is actually getting into the bath. This is physically quite demanding, and your child may not have enough strength or balance to do this by themselves. There is a variety of equipment available to make this easier and safer for you and your child.
Bathing babies and small children in the bottom of a standard bath can be difficult and physically uncomfortable for parents. Baby baths placed at a more comfortable height on a stand or over an existing bath can provide a solution for a short time.
As children with additional needs, particularly those with mobility difficulties, grow big enough to use a standard bath, lifting them in and out together with the twisting and bending involved in this manoeuvre can increase the risk of back injury.
There is a small but useful range of devices to assist your child to get in and out of the bath. This increases their independence and reduces the strain on your back as you assist them.
A limited range of removable, bath-shaped overlays are available. These sit across the rim of a standard bath, enabling the child to be bathed at a higher level. The overlay bath is filled from the bath taps and the water drains into the bath after use. Storage of these overlays can be difficult when not in use due to their size.
A small range of manual and powered lifts have been designed for children and make it easier for your child to get over the side of the bath and up and down from the bottom of the bath. They allow the child to sit in a supported position and either lift their legs over the side of the bath, or the whole seat is lifted up and over the side of the bath.
Most bath lifts offer support in a reclined or semi-reclined position. In their lowest position, these are often several centimetres off the base of the bath, so more water is needed if your child likes to sit in the water.
A small range of inflatable bath lifts are also available. These offer little or no back support, but the advantage is that, when deflated, they allow the child to sit on the base of the bath with plenty of space to play. However, they will need to be able to reposition themselves correctly onto the lift and have sufficient sitting balance to sit safely as the lift inflates.
Bath lifts are removable so that the bath can be used by other members of the household. They can be heavy and cumbersome to lift.
It may be possible to adapt an adult bath lift or floor-mounted hoist by using a vacuum support cushion on the seat to provide a smaller, more supportive seat for an older child. A harness may be necessary for security. An older child that does not need a great deal of postural support might only need a harness.
An adjustable height bath has been designed to be raised, either mechanically or electrically, so that a parent or carer does not need to bend over the bath to wash the child.
An older or more able child may be able to step into the bath at its lowest level and then be raised to a convenient height for the parent or carer to assist with washing. This style of bath is not often used in a domestic setting.
A child with good sitting balance may be able to use a bath board and/or seat. A bath board spans the bath rim to provide a platform to sit on whilst they lift their legs over the side. The child could sit on the bath board to use an over-bath shower if this is preferable.
A bath seat provides an intermediate seat between the top and bottom of the bath and is fixed to the base of the bath with suction cups. This combination leaves limited space in the bath, particularly for an older child and requires good upper body strength to move between the board and seat.
Some bath boards have integral handles for support, alternatively grab rails positioned on the wall alongside the bath board/seat provide a secure handhold when transferring in and out of the bath. A slip-resistant mat on the bottom of the bath reduces the risk of the feet slipping.
Before purchasing a bath board or seat, consider the following:
These are sponge foam cushions or shaped plastic supports designed for infants and sculpted to provide a degree of support for the head and body whilst allowing for limb movement. They can only be used in a shallow-filled bath and may be particularly useful for stabilising a small, floppy baby (a word used to describe low muscle tone).
The majority of hammock bath supports comprise of a frame with a fabric or mesh cover that supports the child in a semi-reclined position, and a range is available for infants.
For older children who need additional support, there are products available that enable you to place the child on the support, at the level of the top of the bath and then operate a simple lowering system to take them down into the water. Some have straps or foam blocks attached by Velcro that help to keep the head, trunk or legs in position.
A range of mesh supports are available that offer considerable flexibility in the angle of recline and the seat height from the base of the bath. The mesh can often be adjusted to alter the amount of give.
When choosing a hammock support consider:
These are either contoured or mouldable to provide the child with additional support. In some instances, they can be used to decrease the depth of the bath so that it is easier to access, or to reduce the need for a parent to bend.
The mouldable supports are filled with beads and will shape themselves around the body of the child and this makes them adaptable to the individual user. The shape can be fixed semi-permanently if air is extracted using a foot pump. They are secured to the sides and bottom of the bath with suction cups. Mattresses are available which work on a similar principle, except that the air is dispelled into a separate chamber.
Head floatation devices designed for swimming can also be used to keep the head above water, although a child with poor head control is likely to need a more complete body support.
Before choosing a bath cushion or bath insert consider:
These have a seat, backrest and sometimes side supports to provide support for children who cannot sit upright unaided.
Bath lifts can often provide additional sitting support such as lap/chest straps, pommels, seating wedges and head support. Some allow the child to have their legs supported in a long sitting position.
Before choosing sitting supports, consider the following:
These are available for children who need a limited amount of support when sitting with their legs stretched out in the bath. The width of most backrests is adjustable and suction cups secure them to the sides of the bath. The grab bar can be used in conjunction with a sitting support. The suction cups may deteriorate with age and lose their grip, so they should be regularly checked for wear and tear and also to ensure they are gripping for each use.
When designing an accessible bathroom for a child with a disability, first and foremost we recommend an individual assessment with an occupational therapist as your child may be eligible to receive a disabled facilities grant (DFG) to help towards the cost of the adaptation. The information contained below is not intended as a replacement for a thorough occupational therapy assessment in your home environment.
Information and advice on design issues is available from the Centre for Accessible Environments (CAE). The organisation is a leading authority on inclusive design, and they provide consultancy, training, research and publications on building design and management to meet all user needs. This organisation keeps a database of architects, surveyors and similar professionals with experience of designing for disabled people, and has a number of useful publications and design sheets.
N.B. No child should be left unsupervised in the bath even if in a supportive bath chair. Similarly, young brothers and sisters should not be left in charge of a child in a bath seat.
Getting an older child in and out of a bath can be difficult and showering can offer a safer and more manageable alternative. Showering may also make it possible for the child to be more independent.
The needs of other family members must be considered, particularly if there is not enough space for separate bath and shower facilities.
It is sometimes possible to build an additional bathroom or adapt an existing space to provide secondary washing facilities, with the help of a Disabled Facilities Grant.
Shower facilities can be provided:
These provide support for children who can sit to shower. Wall mounted options are available (see below). There are a range of styles and models, so check:
For more supportive seats, see the section below on mobile shower chairs.
Supportive shower chairs can make it difficult to access and wash the areas of the body supported by the backrest, seat, straps and side supports. Many areas have an Equipment Demonstration Centre or similar facility, allowing people to view products before they purchase them, so it may be worth enquiring as to whether they have supportive shower chairs to view.
Alternatively, many companies offer a free assessment at your home. This gives parents an opportunity to learn about the product, see it in situ, and consider if it will meet their child’s immediate and longer-term needs.
When using a shower chair, there needs to be plenty of room around it so that the parent or carer can move around freely, move the chair or help the child, without injuring themselves or getting soaked in the process. Portable half-height shower screens are available to protect the carer from splashes.
These are freestanding, so can be lifted in and out of the shower as required. They are more appropriate for an older, more independent child. Stools tend to have little or no back support whereas chairs have a higher, more supportive backrest.
Selecting the correct height is important. To support themself safely in a sitting position, the child must be able to place both feet flat on the floor. An adjustable height stool/chair can be altered in height as the child grows.
Arm rests can provide additional security and enable a child to stand independently.
Ensure that all toiletries are within reach to encourage independence and reduce the risk of slipping.
This style of shower seat fixes to the wall, usually via hinged brackets, so that they can be folded up out of the way of other family members who want to use the shower. The seat should be fixed at a height to suit the child’s needs. Bear in mind that this will change as they grow. A limited number of adjustable height seats are available which could accommodate growth.
A range of wheeled shower chairs are available for those requiring more postural support. These range from simple shells to more complex modular seating including support for the pelvis, chest and head. User-propelled and attendant-propelled versions are available. Larger wheels can make it easier to push the chair in and out of the shower but will take up more space.
Many mobile shower chairs offer a toileting facility. They can either be positioned over a toilet or used with a commode pan. This type of chair reduces the number of transfers that need to be made between the bed, toilet and shower. Larger children who are physically less able may need to be hoisted into the chair.
Before choosing a shower chair with a toileting facility consider the following:
Shower chairs for children generally have a range of supportive accessories including:
An assessment with a reputable company rep is recommended to make sure that the chair offers the right level of support.
Larger children or children requiring less support will be able to use an adult shower chair which can be fitted with cushion inserts to reduce the internal seat dimensions. Always make sure that their feet are well supported.
There is a small range of shower cradles that comprise a mobile chassis onto which a nylon mesh cradle or a hammock-type bath support is fixed. The angle of the mesh cradle is fixed on some models and adjustable on others. The more upright the support, the less space it will occupy. If a cubicle is to be used, check its size as many of these supports are too long for a standard cubicle.
On some cradles the mesh supporting the head can be detached and folded down to make it easier to wash the hair.
Accessories are often available to assist with head and body positioning and safety.
Some tilt-in-space models offer a toileting aperture.
Wall-mounted shower stretchers can also be used as changing tables and fold up against the wall when not in use. They are made of a perforated material and can be used over a bath, folding down to rest on the bath rim, or in a shower area with two supporting legs which rest on the floor.
Some shower stretchers have adjustable backrests, while others can be electrically adjusted to a comfortable height for the parent.
How the parent will lift the child onto the shower stretcher must be considered. A hoist may be required. Always try to work out a washing and dressing routine that involves the fewest moves from one item of equipment to another as this saves time and effort for the child and parent.
These are mobile showering tables, often with a reservoir to catch the water during a shower. They are large and not often used in the family home because they are difficult to manoeuvre in a restricted space.
Toilet training can be an extremely stressful time. Parents can feel pressurised into getting their child out of nappies in time for the start of playgroup or school. It is important to begin toilet training only when the child is developmentally ready, and there should be a co-ordinated approach between all parties involved with the child. Children with developmental delay will generally take longer to learn the toileting routine.
The child must be able to:
As the child develops their new skills further and moves towards independence, they will need to:
Due to the intimacy of toileting tasks, the aim is to encourage and enable children to be independent so that as they get older, they can have as much privacy as possible.
Consider the following difficulties:
There are many different tasks and activities associated with toileting. These include:
The twisting and bending involved in these actions can increase the risk of back injury and this should be reduced where possible. This could be done in the following ways:
An increasing range of potties are widely available from shops with an integral backrest and arm rests for additional support. They are more like a chair as they are higher from the floor and these may provide adequate support for a child with mild difficulties enabling them to transfer on and off without support.
These plastic seats, commonly available in high street shops, reduce the toilet seat aperture to give a more appropriately sized seat. Trainer seats are secured either by positioning them under the standard toilet seat, or they snugly fit into the toilet seat aperture from above.
Older children will need one that will take their extra weight. Those with a front splash-guard are useful for keeping the legs apart, but may make it harder for the child to get onto.
Before choosing a trainer seat, consider the following:
These comprise of a more supportive seat unit (usually incorporating a backrest, side support, lap strap or harness) that either clamps to the toilet bowl or is freestanding. The toilet-fixed units tend to be less stable than freestanding ones, and fixing must be routinely checked to ensure the seat remains secure. Freestanding frames are more bulky and awkward to move away and store.
Any additional equipment used with a standard toilet can be inconvenient for other family members. A storage place for items when they are not being used will need to be found.
Before choosing a toilet support seat and frame, it is worth bearing in mind the following:
This may be due to a number of reasons including:
Toileting chairs comprise of a standard potty inserted into a chair frame to provide a higher sitting position and better all-round support. Many have a grab rail at the front for added security.
Commodes tend to have a slide-in/lift-in pan, similar to adult commodes, but with more postural support provided by a lap strap, harnesses or hip/trunk support pads.
On most models, the seat height or the height of the footboard can be adjusted to give a supported sitting position.
When choosing a static toileting chair or commode:
These can be used either with a commode pan or can be wheeled over the toilet. They have a huge advantage if space within the toilet or bathroom is limited, as the child can be transferred onto the chair in an adjacent room where space is less restricted. Door widths, floor surfaces and thresholds should be checked to ensure that it is as easy as possible to move the chair from room to room.
Some chairs are also waterproof and can be used as shower chairs. This can reduce the number of transfers required. For more information, see the section in this factsheet on mobile shower chairs. Mobile chairs tend to offer more support than static chairs, have a wider range of accessories and are generally more adjustable.
It is important to enable the child to retain their dignity and privacy. If clothing needs to be adjusted in another room in preparation for toileting, then a blanket or similar covering should be provided whilst the child is in transit.
These are potties or accessories for a standard toilet with an integral electronic sensor, which detects temperature increase or moisture and plays a tune to encourage toileting. These are increasingly available from mainstream shops.
These are moulded into many potty chairs and trainer seats, but can also be bought as an accessory to be clipped onto a standard toilet bowl/seat.
Consider the size carefully, as it will affect comfort and transfers. Also consider if your child will tolerate it.
The fixings are not designed to withstand forces, so consider if the equipment will be durable enough for your child’s needs.
In some areas, continence pads and nappies are supplied free via the NHS for children with disabilities over the age of three years. Contact your health visitor for information on local services.
Nappies and pads should be changed in a designated area where there is a high degree of privacy and where items are to hand. The changing area should be at a suitable height for the parent to reduce strain on the back. Ideally, there should be easy access to a toilet and washing facilities.
A limited range of changing mats for older children is available, but it may also be possible to use an exercise mat, e.g. an Airtex mat. These are lightweight, cushioned, can be cleaned and feel warm to the touch. A child who may roll off will need a raised border cushion around the edge of the changing mat
If a changing mat is used on the floor, parents need to consider their backs when lifting the child on and off the mat and when attending to them. Encourage your child to lay down and stand up as independently as possible.
Changing tables provide a surface on which children can be cleaned, changed and dressed. Height adjustable models reduce the amount of manual lifting and bending involved. The child should be encouraged to transfer on and off as independently as possible. Mobile versions are also available. It may be necessary to use a hoist to help with transferring an older or more dependent child.
A child may need several different types of seating throughout the day, depending on the environment and associated activities. For example, supportive, functional seating may be needed in school, whilst at home both comfortable seating for relaxation and functional seating for homework and meal times may be required. Many seating systems offer the option of a height adjustable base and/or a tilt-in-space option.
It is important that the occupational therapist and physiotherapist working with the child are involved in the choice of chairs. They can advise on positioning to encourage head control and sitting balance, and on chairs that will encourage a symmetrical sitting posture.
Good seating is the key to many activities. By reducing the amount of effort and energy used trying to stay sitting up straight, a child will find it easier to carry out important daily activities, such as feeding, playing and learning.
Good seating will provide the following benefits:
Generally, it is the responsibility of the occupational therapist to advise on seating. However, children with severe seating difficulties may occasionally be referred to a specialist seating clinic run by the NHS, which provides advice on seating and special seating units for chairs, wheelchairs and buggies.
If specialist seating is required at school, then funding may be available through the local education authority. To make procurement of equipment easier, it may be appropriate to refer to it in the child’s Education, Health and Care Plan (formerly known as a Statement of Educational Need).
When considering chairs and seating equipment for your child, there are many important factors to keep in mind. For example:
These are filled with polystyrene beads and covered in a flame-retardant material which may also be waterproof. The beads mould around the body and, whilst they might provide a relaxing medium, they are unstable and do not encourage a symmetrical position and are difficult to transfer in and out of and are not recommended for prolonged sitting.
There is now a range of bean bag seating that incorporates a moulded shell. The shell is formed for each individual child and enables them to be supported more symmetrically in the bean bag. Do consider that your child will soon grow out of the mould, and it will need to be replaced before it becomes uncomfortable and unhelpful.
These are generally made of foam and are shaped to look like cube-shaped armchairs. They can have a backward sloping seat, high sides, wide padded armrests and easy-to-clean vinyl or fabric covers. Some have seat inserts that can be removed as the child grows.
They are useful for children with learning disabilities who tend to rock repetitively, putting a strain on ordinary wooden framed chairs. They are also useful for children who have epilepsy or self-injurious behaviour, as there are no solid structural components on which the children can injure themselves.
They have a backward-sloping seat that makes it more difficult for the child to slide forwards out of it. However, transferring in and out of these chairs can be difficult. Some have the option of a tilt-in-space seat unit and some models have an activity tray that fits between the armrests.
There is an increasing range of seating designed to connect to a stereo to enable the user to feel the music through their body. These generally offer minimal postural support in an upright or semi-reclined posture.
Seating a child who rocks significantly can be challenging. However, there is now a limited number of chairs that safely allow a rocking action in the seat and backrest. This facility can also be locked off if required.
These chairs are generally popular with families for home use, as they look like ordinary armchairs and the upholstery can be chosen to match other chairs.
Some models are multi-adjustable, so that they meet the needs of the growing child. They also enable the child to sit in a variety of supported positions including:
Most have adjustable width armrests and a contoured backrest, with head support and wings to help to support the child when sitting up. Harnesses, lap straps and trays are available for some models, as well as waterproof covers that can be put on under the upholstered covers. Pressure relief can usually be incorporated into these chairs if needed.
These chairs are usually adjusted by the company reps to provide the correct amount of support for the needs of the child. Later, a therapist or parent can be shown how to alter it as the child grows or his condition changes.
Small children will want to spend a lot of time on the floor, as this is the usual place for playing and is relatively safe. Floor sitters will provide support for children who find it difficult to sit up unaided, and will enable them to interact more easily with other children and make eye contact. It will also provide them with opportunities to further develop their postural control.
These chairs have a V-shaped backrest that provides support at the back and sides of a child sitting on the floor. They are useful for children that are developing sitting balance, but who are inclined to fall back or sideways if they overstretch.
Many corner seats have a pommel at the front to keep the legs abducted, which may benefit children with cerebral palsy. These children often find it difficult to sit with their legs out in front of them and tend to go into extensor spasm. A backrest below shoulder blade height can reduce extension tone. The likelihood of extensor spasms can also be reduced by raising the seat a few centimetres up from floor level, or by sitting the child on a forward angled wedge.
These seats make it possible for the parent to play and interact freely with the child without needing to support them in a sitting position.
Tumble forms are a particular type of corner/floor sitter chair. This style of seating is made from firm density foam which has a stain and urine-resistant surface. The seats are shaped to provide a slightly concave interior to give some side support, head support and a pommel to keep the legs apart. They are non-adjustable, so sizing must be reviewed from time to time. They are used for floor sitting with a wedge to alter the angle from a more upright to a more reclined position. Due to their 'bucket' shape, they can be difficult to transfer out of independently.
Care should be taken as the plastic covers may split and unless these are patched, the foam inner will get damaged.
The outer plastic cover can be hot and sweaty to sit on, but a stretch towelling cover is available.
Before purchasing a tumble form consider the following:
A wide range of activity chairs are available and they vary in the degree of adjustability and support they offer. The aim of these chairs is to support the child in an upright position and to assist them with participating in everyday activities. A basic activity chair is simply one step up from a standard school chair for children who just need a small degree of additional support. Multi-adjustable chairs have a wide variety of components that can be mixed and matched according to the amount of support the child needs.
Most of these chairs are made of wood and have a range of accessories which bolt or screw into them to provide support and good positioning. They are used mostly in schools and nurseries.
Some have flat seats, some have a choice of seat angle to provide a more stable sitting position and others have a contoured, moulded or bucket seat that will provide more stability, but will be less flexible as the child grows.
When looking at basic support chairs, the following should be considered:
There is an increasing range of functional chairs that are highly adjustable. These chairs are designed to grow with the child and a wide range of accessories can be added or removed as the child’s needs change.
Accessories include:
A wide range is available, offering different levels of support. For a child with reasonable head control, it can simply be a place to rest your head when tired. Headrests can also provide side support, to help keep the head in a mid-line position, although this may obscure side vision. Often, head supports can be mounted on multi-adjustable frames which allows for accurate positioning. Switches for communication devices or powered mobility can be placed on the headrest. Some headrests can be fitted with a head strap or cap to prevent the head from falling forward. Alternative products are available that can be compatible with modular seating such as a 'roller coaster' style head support which supports at neck level. This prevents the child from getting their head stuck under or behind a conventional head rest. More recently, a dynamic head support has been developed that suspends the head from above. Check the compatibility of the product, as a bespoke bracket may be required. Head position is crucial. A good head position is reliant on good positioning of the pelvis and trunk. Once this is achieved, make sure that the head rest provides the support your child needs. Try alternatives if possible, to see what works best.
These come in a variety of sizes and offer varying levels of support. Supporting the upper body to help maintain an upright and symmetrical position. Swing away supports are useful to enable access to fit and remove slings for hoisting.
To support the curve in the lower back.
These are useful for children with low muscle tone and are added to the outer edge of the seat to prevent the legs rolling outwards.
Positioned centrally at the front of the seat to stop the legs from rolling or pulling together in an abduction spasm.
To provide support for children with weak upper body muscles, and who tend to slump forward.
To keep the feet on the footrest in alignment.
These are positioned in front of the knees to help keep the pelvis in a neutral position and the legs in a neutral, symmetrical position.
For the child who enjoys rocking in their chair. There are a limited range of chairs with a built-in mechanism to allow safe rocking of the seat base and back rest. This function can be easily switched off when required.
For the older child with significant postural support needs. There is now a modular system offering a highly adjustable back rest that is in three sections, all of which can be adjusted in every direction. This enables the chair to be altered specifically to prevent or accommodate spinal changes. This can be a useful product to postpone use of moulded seating.
Many chairs have a backward sloping, ramped or human shaped cushion to encourage the child to sit with their thighs horizontally and with the pelvis in a neutral position. This promotes an upright position and reduces the risk of sliding forwards.
Some children benefit from leaning slightly forwards in a seat that angles down towards the front of the chair, combined with chest and foot support. This may increase the child's ability to use their arms for activities such as feeding, working and playing. The multi-adjustable seating can often be provided with a tilt-in-space function and height adjustable base. This enables the child to gain the benefits from different seat angles.
This type of seating can be useful for or a child with cerebral palsy who has good upper body strength, but whose legs pull tightly together. Sitting astride the bolster forces the legs apart and induces more normal muscle tone. This makes it easier for the child to have control of their arms for activities such as eating and schoolwork.
A frequent problem with this type of chair is how to get on and off it. More able children may find it easier to step on and off, otherwise lifting or hoisting may be necessary.
This type of seating tends to be used for children who cannot attain a good, comfortable position in off-the-shelf, adjustable seating. Some systems are made up of interlinking components (modular seating) that can be re-shaped when necessary; whereas others are permanently moulded into a particular shape. Children requiring this type of seating also often require hoisting. Consider how you will fit and remove slings or whether an ‘in-chair’ sling would be most practical.
Modular systems are made of lots of small interconnecting components that can be re-adjusted as the child grows or if their support needs changing. Some modular systems can only be adjusted by a company representative or therapist who has had special training. These systems are usually covered in stretch, padded towelling.
A permanently moulded seating system is a unique system moulded to match the contours of a particular child. The shell is then padded to increase comfort. A well-fitting mould will support the weight evenly and not cause pressure areas to develop. If the system is to be used as a static seat indoors as well as on a mobile base outdoors, care must be taken to try to accommodate indoor/outdoor and winter/summer clothing. Re-moulds are necessary as the child grows or needs alter, so regular review is essential.
Common problems associated with night-time/sleep management include:
An adjustable height bed will reduce the risk of back strain to the parent or carer, particularly if the bed surface is used as a changing and dressing table.
A bed that can be tilted is useful for a child that needs postural drainage. If a specialised bed that offers this feature is not available, then wedge cushions can be used on top of the bed.
Some children, particularly those with altered muscle tone, may need help with positioning 24 hours a day to prevent muscle shortening and joint contractures. Night-time can be the best time to achieve body symmetry. During sleep, they will need to be positioned symmetrically - side-lying, prone-lying (on front) or supine-lying (on back).
N.B. research into cot death syndrome has shown that it is not advisable to lay young babies on their tummies (prone) to sleep. Some children require turning during the night if they become uncomfortable. Consider how this will be achieved with minimal sleep disturbance for the parent or carer, and child.
There is a range of wedges, rolls and positioning systems designed for use in bed. Often, the simpler the equipment is, the more likely it is that families will continue to use it. Components do not need to be complex; often a favourite stuffed toy placed correctly can be all that is needed with the added bonus of emotional comfort.
Consider the following:
Children making the transition from cot to bed may be safer if they sleep on a mattress on the floor. However, assisting a child down onto and up off the floor may increase the risk of back strain.
Often, parents worry about their child falling out of bed. Small mesh sides are readily available from mainstream shops. There are a range of beds that include safety sides; however these do present a risk of entrapment. Before resorting to this type of equipment, monitor your child’s position in the bed over a week or so. If they rarely move much, then you needn’t be concerned. Bed sides should not be used to restrain a child within the bed. A child can be put at higher risk of injury if they are likely to attempt to climb over the sides.
Pairs of safety sides can be added to an existing bed. Most are designed for adults, so parents should ensure that the width between the rails is not too great, as there is a risk that a child’s head may slip between them. Some can have mesh infills and some safety sides can be padded to make the bed environment safer for a child that self-injures or who has uncontrolled movements.
Check with the manufacturer that the product meets current regulations for use with children.
Bed safety rails (cot sides) are designed to help stop children rolling out of bed accidentally. They are not designed or intended to limit the freedom of children by preventing them from intentionally leaving their beds; nor are they intended to restrain children.
It is essential that bed rails are suitable for the children using them and compatible with the particular bed being used. Bed grab handles are unsafe to be used as bed rails, as they are designed only to aid children getting in and out of bed and move around whilst in bed.
There is a British Standard for medical beds for children or users with a body length of up to 155cm (BS EN50637:2017 – ‘Medical electrical equipment. Particular requirements for the basic safety and essential performance of medical beds for children’). The Medicines and Healthcare Products Regulatory Agency (MHRA) have issued a guidance on the management and safe use of bed rails which contains more details about this, including guidance on bed rail dimensions in Appendix 3.
Serious injuries have occurred from the use of bed rails. The prescribing, selecting, fitting and maintenance of bed rails therefore needs considerable care. It is advisable to have a professional, such an occupational therapist, source and fit these if you are unsure about their safe use.
MHRA advise that measures to mitigate the risks associated with bed rails should be considered as part of the initial risk assessment. These measures include:
It is important to remember that:
For children whose behaviour is unpredictable (including those who regularly have seizures at night) and are therefore at high risk, it may be necessary to introduce a 'safe space'. This is often in the form of a low mattress surrounded by padded low walls. These items can be made to measure.
An alarm system that monitors pressure can be used to alert the parents that the child is getting out of bed. A pressure mat alarm can be placed at the bedroom door to alert the parents that the child is moving out of the bedroom.
To give the child the freedom of the bedroom but to prevent them from moving to other rooms, two sets of door handles - one above the reach of the child or just one handle high up – or an alarm sited at the doorway may provide a solution.
Parents can also use baby alarms to monitor activities; video versions of these are now widely available. As the child gets older, they should be allowed a degree of privacy if at all possible.
A standard baby alarm can be used by the child to call for assistance, but not all baby alarms allow for two-way communication. As a result the parent or carer may be unable to re-assure the child that help is on the way.
A two-way intercom can be a better solution. Some systems are hands-free operated. Older children should be able to turn off their intercom station if they require some privacy.
Epilepsy alarms that monitor the vital signs or movement of a child and trigger an alarm should a fit occur, can greatly decrease the anxiety felt by parents about the safety of their child at night.
There is an increasing range of this equipment available to meet different needs and budgets. Charitable funding may also be available from specialist charities.
Standard anti-suffocation mattresses and pillows are available from high street nursery shops. These are made of foam with a dimpled surface which creates air cavities between the pillow and the cover, even when supporting the weight of the head.
Dressing a disabled child and teaching independent dressing can be a very time- consuming process. A changing bench, shower stretcher or an adjustable height bed can all be useful to make dressing a dependent child easier. It is important to have all that is necessary to hand so that the child is not left unattended.
For children who are learning to dress themselves, equipment which provides support during sitting and standing may be required. For example, a low-level bench may enable the child to sit with their feet flat on the floor, providing good support. Their clothes need to be close by and there should be room for an adult to demonstrate and assist with the more difficult dressing tasks.
A wall rail or ladder-back is a useful support for a child to hold onto when getting up from sitting to standing, and when dressing and adjusting garments. A ladder-back allows the child to move their hands progressively up the rungs to pull themselves up.
There is a small range of dressing aids available for adults that may also be useful for your child such as dressing sticks and sock aids.
Careful choice of clothing can make dressing a child easier, and can give them a higher level of independence. Look for:
When choosing any equipment for your child, it is important to remember:
Before you buy equipment for your child, we would advise you to seek specialist advice to help you plan for both immediate and long-term needs, to increase awareness of the alternatives on the market, and to check whether the equipment you need can be provided by statutory services.
Everyone, including carers, has the right to ask social services for a community care assessment. The council assessor will consider the type and level of need and suggest a range of solutions that may include provision of equipment.
Since April 2003, people have the right to ask for a direct payment of money instead of a local authority community care service. This includes the right to ask for money towards alternative equipment if this is preferred to the equipment offered by the council.
A local authority is unlikely to help directly if needs are few or simple, but may advise on alternative ways of meeting the need, e.g. where you can buy equipment locally or via mail order, or suggest a visit to a local Disabled Living Centre.
Disabled Living Centres provide impartial advice and the option to try out equipment. Not all centres display equipment for children. You will need to contact your nearest centre to find out if it can help you.
Several professionals working within the NHS or local council social services can give you help and advice on daily living difficulties.
A paediatric occupational therapist (OT) has specialised in matters relating to children and can advise on different techniques for managing tasks that your child may be finding difficult, and on ways of promoting the independence of your child. They can also give advice on the use of assistive devices to help with day-to-day activities. A referral to a paediatric OT can be made via your local hospital, Child Development Centre or through the ‘Children with Disabilities Team’ at your local council’s social services department.
The community nursing service can assess and provide equipment for nursing care, incontinence pads and nappies.
A speech and language therapist can advise on communication difficulties, and on feeding and swallowing difficulties. Therapists work within NHS hospitals and clinics. You can contact your local speech and language therapy service direct or ask your GP to refer your child.
Before purchasing, look for a sales company that belongs to a trade association, such as the British Healthcare Trades Association (BHTA). The BHTA aims to improve standards in the provision of healthcare and assistive technology. BHTA members have signed up to a Code of Practice which aims to ensure that members provide products and services that are professional, ethical, and trustworthy.
If you do not have the funds to buy equipment, it may be possible to request support from a charity. They will usually have criteria which they will apply, and most will not consider equipment which should be provided by the NHS or Social Services.
Some charities will only consider requests which are supported by an involved professional, usually an occupational therapist, physiotherapist or a nurse. This may require them to be present during the assessment for an item of equipment. This is to ensure that the equipment is appropriate and will not have an impact on planned treatment or rehabilitation programmes.
Equipment is not always purchased outright and gifted to you. Some items are provided on loan, either for a specified length of time, or to be returned when no longer needed or appropriate for use.
A number of charity websites that offer information about funding are listed here:
If the equipment or adaptation required costs more that £1000, you may be eligible to apply for a Disabled Facility Grant to pay for home adaptations, providing the work is ‘reasonable and practicable’ and ‘necessary to meet the needs’ of a person with a disability. This can include extensions and structural work to accommodate fixed hoists, stairlifts, downstairs bathrooms, shower units etc. You can apply for a grant of up to £30,000 in England, up to £36,000 in Wales and up to £25,000 in Northern Ireland. Conditions for DFGs will vary according to the country in which you live.
To apply for a DFG for housing adaptations your needs will be assessed by an occupational therapist. They usually come to your home to assess your needs, and this can include a joint assessment together with you and any carer you may have. They can also do assessments over the phone. They will then contact the relevant council departments with any necessary evidence they have gathered to show that the work proposed is appropriate and meets all the requirements for funding.
Age UK has a factsheet (‘Factsheet 41. How to get care and support’) which explains more about the DFG process.
Disability Rights UK has some very comprehensive online information about Disabled Facilities Grants and other housing grants.
DFGs operate across England, Wales and Northern Ireland. Conditions for DFGs will vary according to the country in which you live. More information on Disabled Facilities Grants in your area are available on the government website.
If you have a diagnosed long-term condition, you may be able to claim VAT relief when purchasing equipment. Ask the supplying company or check their website for further information. More information is available on the GOV.UK website.
Equipment suppliers may have the VAT exemption form on their website, or you can download a general form from HM Revenue and Customs before you make your purchase. You will need to fill in a form for each supplier you use, but you will only need to do this for the first purchase with them.
Age UK (2024). Factsheet 41. How to get care and support. Available at: https://www.ageuk.org.uk/siteassets/documents/factsheets/fs41_how_to_get_care_and_support_fcs.pdf (Accessed: 28 November 2024).
British Healthcare Trades Association (BHTA) (2024). Available at: https://www.bhta.com/ (Accessed: 28 November 2024).
British Healthcare Trades Association (BHTA) (2024). How our Code protects you. Available at: https://www.bhta.com/how-the-code-protects-you/ (Accessed: 28 November 2024).
Centre for Accessible Environments (CAE) (2024). Available at: https://cae.org.uk/ (Accessed: 28 November 2024).
Disability Rights UK (2024). Housing Grants. Available at: https://www.disabilityrightsuk.org/resources/housing-grants (Accessed: 28 November 2024).
GOV.UK (2024). Declaration of eligibility for VAT relief (disabled person). Available at: https://www.gov.uk/government/publications/vat-reliefs-for-disabled-people-eligibility-declaration-by-a-disabled-person (Accessed: 28 November 2024).
GOV.UK (2024). Disabled Facilities Grants. Available at: https://www.gov.uk/disabled-facilities-grants (Accessed: 28 November 2024).
GOV.UK (2024). Get VAT relief on certain goods if you have a disability. Available at: https://www.gov.uk/guidance/vat-relief-on-certain-goods-if-you-have-a-disability (Accessed: 28 November 2024).
GOV.UK (2024). Guidance. Bed rails: management and safe use. Available at: https://www.gov.uk/guidance/bed-rails-management-and-safe-use (Accessed: 28 November 2024).
Health and Safety Executive (2024). Safe use of bed rails. Available at: https://www.hse.gov.uk/healthservices/bed-rails.htm (Accessed: 28 November 2024).
Independence at Home (2024). Available at: https://independenceathome.org.uk/ (Accessed: 28 November 2024).
RNIB (2024). Grants. Available at: https://www.rnib.org.uk/living-with-sight-loss/money-and-benefits/benefits-concessions-and-grants/grants/ (Accessed: 28 November 2024).
RNID (2024). Benefits. Available at: https://rnid.org.uk/information-and-support/benefits/ (Accessed: 28 November 2024).
SCOPE (2024). Disability grants. Available at: https://www.scope.org.uk/advice-and-support/finding-applying-funds-grants (Accessed: 28 November 2024).
Sense (2024). Grants for disabled people. Available at: https://www.sense.org.uk/information-and-advice/benefits-and-money/benefits-and-financial-help-if-youre-a-disabled-adult/grants-for-disabled-people/ (Accessed: 28 November 2024).
Strongbones (2024). Available at: https://www.strongbones.org.uk/ (Accessed: 28 November 2024).
Turn2us (2024). Available at: https://www.turn2us.org.uk/ (Accessed: 28 November 2024).